Our Story

We’re here to help you face your monsters…

Here’s a bit from our story and why we understand your struggles.

Becca has struggled with many chronic illnesses since the age of 15. She spent 3 1/2 of those years undiagnosed, going from doctor to doctor to doctor looking for help before she found the miracle one who has helped us find answers.  He is still helping us look for answers.

She has been diagnosed with POTS, MALS, Chiari Malformation, Mast Cell Activation Disorder, Ehlers Danlos Syndrome, Intracranial Instability, Nutcracker, May-Thurners and so much more. Among other procedures, she has had a painful MALS surgery and three brain surgeries.

These illnesses have had a tremendous emotional impact.  Not only has her life been full of unbearable pain, but also phases of complete loneliness, hopelessness, and an overall sense of no purpose in life.  If she tried to talk about what she was going through, people would make fun of her and tell her she was faking it for attention.  Friends no longer wanted to hang out because she couldn’t physically do anything and was bedridden for years.  She lost most of them. She had years of living in heart-breaking solitude.

Her life has been a complicated roller coaster ride of redefining her life, her purpose, and her friendships with all of the ups and down that come with chronic illness.  She is still trying to learn how to navigate the scary parts of life with a body that constantly fights itself, but has learned to find joy in the small and simple things.  She is grateful for the strength these challenges have given her, and is excited to share her story in the hopes it will help someone else in a similar situation physically or mentally.

Tara has faced all of these monsters year after year with Becca.  She has struggled to be a physical and emotional caregiver.  She has had parts of her permanently break as she watched her daughter die and have to be brought back to life on multiple occasions.  She has had to navigate the complicated straits of insurance and has had to pay more in medical bills than she did for her house — all while trying to balance taking care of the rest of her family as well.  She lost her life in completely different ways.

As we have struggled together, we have made friends with new people of all ages and with all kinds of issues. We have learned that the only way to cope with the pain and misfortunes of life is by helping other people and by being there for those who are struggling. We know what our purpose in life is now:  to help others realize that they aren’t alone with their monsters and that there are other people and communities who face the same challenges, pains, and fears.

Our Monsters isn’t just a way for us to cope and know we’re not alone, but to help others cope and share their stories as well.

Our Mission

Our goal is simple.  We know life is scary.  But you can use our monsters to help you face your monsters.    We want our monsters to help you find:

  1. Courage.  Use OurMonsters to help you stand up to your own.  Everyone is stronger with a friend by their side.
  2. Comfort. Use OurMonsters as a huggable friend when you are having a hard time.  Cling tight. Don’t let go. Cry a little. It’s okay. OurMonsters want to help soothe your savage soul.
  3. Conversation. Can your monsters talk?  Maybe not. But you can.  Use OurMonsters to start a conversation about your own.  Use OurMonsters to provide validation that the scary things life can throw at us are very hard.  We need to talk about them. We all need help.

Your Story

One of the hardest parts of having a monster is how alone it can make us feel. How misunderstood. How desperate. You start to feel like you no longer matter. You can no longer make a positive difference.

Your story DOES matter. Your experiences matter. Your voice matters. There are people who can be helped and comforted by knowing that you share their monster. There are people who can be inspired by what you have overcome and what you are still trying to overcome.

Use this form to share your story and a picture.  We can even share anonymously if it would make you feel more comfortable. Let us all see that there is beauty to be found in our monsters, and that we have far more in common than we think. Every Monday we will feature one of these stories so that others can be inspired by YOU!

    dino monster
    frenzy monster
    nervish monster
    scream monster
    patchy monster
    blue monster