Today’s post is not very motivational. It’s raw and honest, which I think is something people need. FRIDAY I woke up feeling terrible. A part of me thought it was...
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November is a month of mixed emotions for our family. It is the month that marks my first major surgery four years ago, and the highs and lows that came...
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My mom inspired me this week. She inspires me all the time, but that’s not the point. She gave you a Halloween Top 5, so I’m going to give you...
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In honor of Halloween coming up, I’m giving everyone a more gory peek at my autokidney transplant and an update on my recovery. Literally a look at my insides, so...
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“Wow are those Danskos?! Those are so cute! Where did you get them?” Said no one ever! I am ALL about fashion. Fashion is my passion. I could spend hours...
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Get it …? I’m actually out and standing. For the first time in almost 9 years, I’m standing. I’m standing! Can you imagine the joy of standing after having leg...
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Look at this picture. I'm scarred for life. Seriously. And with more than just this one. I have another large scar on my stomach. And another all the way around...
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Nutcracker. No, not the toy soldier or the ballet. However, it is quite a bit like the little toy soldier who squeezes a nut until it breaks. Nutcracker Syndrome got...
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In April of 2020, I was doing “great.” Of course, great by my standards is barely survivable by most people’s. My daily life includes leg pain so great I can...
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In one day. It doubled in one day. I’ve already been diagnosed with plenty of other illnesses: POTS (Postural Orthostatic Tachycardia Syndrome), Dysautonomia, MALS (Median Arcuate Ligament Syndrome), EDS (Ehlers-Danlos...
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